Friday, June 27th
Hello friends,
Back from NIH. News not great. Glenna's tumors have grown. She also has one new lesion, and unfortunately, it is in her brain. They advised her to stay on the steroids to control headaches. And, at this time, they recommend that she start on an oral chemotherapy - Temodar, which may slow down the growth process, and in some cases has actually caused shrinkage. This particular chemo is the only one that crosses the blood-brain barrier, and may help with the progression of her brain mets. Of course, she is ready and willing to start. She and Bob went up to MGH today to see Dr. Lawrence and get the prescription to begin. The side effects are supposedly minimal, and she takes this drug at home, so it will not mean constant visits to the hospital. Once more, its a wait and see process. If it has some good effects, she can continue to stay on it and hopefully in the meantime, the docs at NIH may come up with a variation of treatment that may work better for her. While at NIH, we met with her doctor, Dr. Mathur, as well as her surgeon, Dr. Sherry and with the big guy, Dr. Rosenburg. They were all very positive that the work they are doing now with the cell treatment is actively changing and improving, and their hope and plan is to get Glenna back down there with something new. Wonderful doctors!
Now is the time that she needs your best wishes. She (and we) remain positive and look ahead with hope.
Our love to all, MK
Back from NIH. News not great. Glenna's tumors have grown. She also has one new lesion, and unfortunately, it is in her brain. They advised her to stay on the steroids to control headaches. And, at this time, they recommend that she start on an oral chemotherapy - Temodar, which may slow down the growth process, and in some cases has actually caused shrinkage. This particular chemo is the only one that crosses the blood-brain barrier, and may help with the progression of her brain mets. Of course, she is ready and willing to start. She and Bob went up to MGH today to see Dr. Lawrence and get the prescription to begin. The side effects are supposedly minimal, and she takes this drug at home, so it will not mean constant visits to the hospital. Once more, its a wait and see process. If it has some good effects, she can continue to stay on it and hopefully in the meantime, the docs at NIH may come up with a variation of treatment that may work better for her. While at NIH, we met with her doctor, Dr. Mathur, as well as her surgeon, Dr. Sherry and with the big guy, Dr. Rosenburg. They were all very positive that the work they are doing now with the cell treatment is actively changing and improving, and their hope and plan is to get Glenna back down there with something new. Wonderful doctors!
Now is the time that she needs your best wishes. She (and we) remain positive and look ahead with hope.
Our love to all, MK
posted by Glenna @ 6:12 PM
5 Comments:
At 10:30 PM,
Anonymous said…
Dear Glenna and Colleen and Bobby and Jacob,
You are very special to us,,we have a galaxy of hope and care , concern and love,,,,,,,,and we can feel everyone's love for you, It keeps filling up to overflowing- I can feel how constant it is --- you have such a large network,,, it's so big! And there is sooo much love !!!!!!
We hold you close to our hearts -
Capt. Pete should have a delicious ocean catch for you soon!
xxxx00000 P, M, & K
At 1:00 PM,
Anonymous said…
You're collective endurance is overwhelming to us on the edges of your private lives. From you we are learning patience, humility, sincerity, graciousness, kindness, and how to love more fully. From every step you take you are teaching us how to live a meaningful life.
We will always love you - BBK&R
At 6:32 PM,
Andy said…
Glenna,
I am sorry to hear that you did not get the great news this past week. However, I am confident that Dr. Rosenburg and the rest of the NIH team will find a therapy that works better.
I've only met you a few times, but as a person who is in a similar situation, I have to tell you that I am impressed by you. You have an amazing spirit and a positive attitude. You are kind and bright. You have a great family, who cares about you. I know how important that is.
I'm sure I will bump into you again at NIH, but if you want to talk anytime before then email me at andrewmarsh25@gmail.com.
I will keep you and your family in my thoughts and prayers.
Andy Marsh
At 9:23 AM,
Anonymous said…
Glenna & the Kohl Family- I love you lots!
At 11:42 AM,
Anonymous said…
Glenna and the Kohls,
We know you are all disappointed in the news but God Bless you all for being positive. Everyone who knows you is behind you with prayers and love. Stay positive.
Elizabeth
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